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Global health research in an unequal world: ethics case studies from Africa.

Book cover for Global health research in an unequal world: ethics case studies from Africa.

Description

This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines and their implementation on the ground. The case studies focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations. The book is a flexible resource for training across a variety of contexts, such as medical research organizations, universities, collaborative sites, and NGOs, and for everyone interested in the realities of global health research today. The book is divided into two main parts: training case studies for global health researchers, and academic background. The 42 total training case studies presented in part I are further divided into four sections focusing on the different types of relationships that characterize the practice of global health research: researcher-participant relationships (15 chapters), community and family relationships (12 chapters), institutional relationships (10 chapters), and staff relationships (5 chapters). Each chapter in this first part of the book is composed of an introduction and guidelines page for training facilitators, and a handout for individual or group use (which includes the case study, questions to prompt discussion, and selected further readings). The collection of case studies is followed by guidance on how to use the training case studies. Part II of the book provides a more in-depth discussion of the key perspectives informing the research approach, an analysis of the context of transnational medical research in Africa, and an outline of what anthropology and the social sciences can offer.

Metrics

Book Chapters

Chapter: 1 (Page no: 21) Fieldwork and friendship: working in your own community. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 2 (Page no: 24) Soap and persuasion: recruiting and caring for participants. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 3 (Page no: 28) Gel and/or condoms: safety in a microbicide trial. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 4 (Page no: 33) Friends like how?: getting personally involved with participants. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 5 (Page no: 37) Readability and sweet talk: translation and comprehension of study documents. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 6 (Page no: 42) We don't pay: 'bus fares' and other gifts in research. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 7 (Page no: 47) Your friend has nice clothes: confidentiality and staff identity in HIV home follow-up. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 8 (Page no: 52) Truth and lies: doing fieldwork in your own community. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 9 (Page no: 57) I could be a sex worker: meanings of exclusion and inclusion criteria to participants. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 10 (Page no: 61) They just come and ask questions: participants' understandings of the purpose of research. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 11 (Page no: 66) Responsibility for what and whom?: end-of-trial and long-term healthcare. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 12 (Page no: 71) Hunger is not our mandate: dealing with poverty among research participants. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 13 (Page no: 75) They just want to sign quickly: different interpretations of informed consent. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 14 (Page no: 81) Martha's dilemma: foreign medical research as public good or exploitation? Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 15 (Page no: 85) Routine healthcare: whose obligation? Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 16 (Page no: 92) Everybody's corrupt: understanding suspicion in medical research. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 17 (Page no: 98) Bad press: the origins and impact of 'blood stealing' rumours. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 18 (Page no: 102) People will always talk: protecting participants from stigma in an HIV study. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 19 (Page no: 106) Lost in translation: public communication and power relations. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 20 (Page no: 111) Husband out of town: gender relations and decision-making. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 21 (Page no: 116) Chop your money!: challenges in recruitment and enforcing study rules. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 22 (Page no: 120) My husband doesn't know: involving male partners in microbicide research. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 23 (Page no: 124) Of course we speak English: community engagement and disseminating information. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 24 (Page no: 128) Satanists or scientists?: dealing with negative associations. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 25 (Page no: 132) The Sheep Study: old memories of food, blood and death. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 26 (Page no: 136) Will they leave us where we are?: expectations of medical research interventions. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 27 (Page no: 140) Seeing is believing: trial regulations vs. community engagement in an Ebola vaccine trial. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 28 (Page no: 147) Too many people have turned up!: addressing stakeholders' concerns. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 29 (Page no: 151) Data troubles: collaboration and the future of partnership. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 30 (Page no: 156) Between envy, suspicion and desire: embedding research in government healthcare facilities. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 31 (Page no: 160) The end of a trial: post-trial responsibilities and relationships. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 32 (Page no: 164) Helping hand: working with public hospitals. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 33 (Page no: 170) Whose capacity?: collaboration through capacity building. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 34 (Page no: 174) Like a market: competitive recruitment and double enrolment. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 35 (Page no: 179) Under one roof: sharing resources in a district hospital. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 36 (Page no: 183) We will not do your work for free: incentives, per diems and professional culture. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 37 (Page no: 187) Is it a gift, really?: drug donations, access and social benefit. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 38 (Page no: 196) Per diem: practical inequalities in scientific collaboration. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 39 (Page no: 200) Do anthropologists know best?: relationships between social scientists and medical researchers. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 40 (Page no: 204) Who are you?: employment issues and North-South relationships. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 41 (Page no: 208) Snot for sale: staff's handling of transport reimbursement and rumours. Author(s): Aellah, G. Chantler, T. Geissler, P. W.
Chapter: 42 (Page no: 214) I'm sure you'll give her a chance: employment and corruption. Author(s): Aellah, G. Chantler, T. Geissler, P. W.

Book details

  • Author Affiliation
  • Royal Anthropological Institute, London School of Hygiene and Tropical Medicine, 50 Fitzroy St, London W1T 5BT, UK.
  • Year of Publication
  • 2016
  • ISBN
  • 9781786390042
  • Record Number
  • 20163308509